6905 Xandu Court

Fredericksburg, VA 22407

CAPPSORG@aol.com

 

HELPFUL LINKS

 

We have put together a list of links that may help you find additional information.

 

Support Groups, Organizations and Foundations

Let's Face It

http://www.faceit.org

The Craniofacial Association of Arizona

http://www.azcranio.com/

FACES - The National Craniofacial Association

http://www.faces-cranio.org

KidNeeds.com

http://www.KidNeeds.com

About Face USA Organization

http://www.aboutfaceusa.org/
 

About Face International

www.aboutfaceinternational.org

The Friends Health Connection

http://friendshealthconnection.org

Look Health Fit

http://www.lookhealthfit.com/child-health/infant-and-toddlers

 

Positional Plagiocephaly Related Links

Cranial Technologies, Creators of the DOC Band and more information on Plagio

http://www.cranialtech.com

Orthomerica, creators of the STARband

http://www.orthomerica.com

UK Support Group

http://groups.msn.com/PlagioUK

 

 

 

A petition one of our PlagioMoms put together.  This petition is aimed at AAP and is attempting to get them to take notice and act in regard to Positional Plagiocephaly

http://www.petitiononline.com/0799/petition.html

TorticollisKids - information on Torticollis

http://www.torticolliskids.org

TorticollisKids Yahoo Group

http://groups.yahoo.com/group/Torticolliskids

 

 

Early Intervention services for Physical Therapy of Torticollis 

To locate the Early Intervention Service in your state please visit The National Information Center For Children And Youth with Disabilities website located at http://www.nichcy.org/states.htm  click on your state and look for the section entitled "PROGRAMS FOR INFANTS AND TODDLERS WITH DISABILITIES: AGES BIRTH THROUGH --"  (it is usually through age 2 or 4 years) Here you will find contact information so you can reach the Early Intervention service in your state.

 
 
 
 
 

Site run by the UK providers of the STARband (a UK company called Medistox)

http://www.plagiocephalyuk.co.uk/

 

 

Information about Plagio Prevention - They also sell a instructional video
http://www.headsupbaby.com/

Two Plagiocephaly sites in Spanish

http://www.plagiocefalia.com


http://es.groups.yahoo.com/group/Plagiocefalia/

 

 

Find your State Insurance Department

Click on your state at http://www.naic.org/state_contacts/sid_websites.htm once at your states insurance website, look for information about Health Insurance - or perhaps the Consumer section. Unfortunately these websites are not uniform, so it can take a bit of digging to see if your state offers external appeal/independent review for insurance issues.
 
 
 

Severity Assessment Forms at Cranial Tech

http://www.cranialtech.com/medicalinfo/identifyplagio.html

 

Other Related Links

Lorenz Surgical

http://www.lorenzsurgical.com

American Medical Association - Doctor finder : Information on virtually every licensed physician in the US.

http://www.ama-assn.org/aps/amahg.htm

Ronald McDonald House's : Search for Ronald McDonald houses

http://www.RMHC.com

Angel Flight - An organization that helps with transportation for treatment purposes

http://www.angelflight.com/

FAQ about cranio : FAQ

http://www.pedisurg.com

 

Disability Resources Monthly (DRM) Guide to Disability Resources on the Internet

http://www.disabilityresources.org
 
 

 

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The information on this website should not be used for medical advice.  Medical or health advice should be provided only by medical or health professionals.

İCraniosynostosis And Positional Plagiocephaly Support, Inc.2001